About Us

The VEO-IBD Foundation is the first and only nonprofit organization dedicated to parents and caregivers of children with Very Early Onset Inflammatory Bowel Disease.

We are here to help.

We are parents. We understand.

The VEO-IBD Foundation was founded by parents of a child with VEO-IBD.

Our journey with VEO-IBD started when our son was diagnosed at seven months old. We know how difficult, frustrating, and lonely this diagnosis is. We started this organization to educate parents and caregivers about this disease, empower parents and caregivers to obtain the best care for their children, and enlighten the general public about the hardships and challenges of this disease.

Our son is now in remission. We have found the treatment that works for him. It has taken us years. Throughout these years, we have developed tools and gained insight into managing this disease. We want to help the VEO-IBD community better manage their child’s disease, help build strong relationships between you and your child’s medical team, and help you understand the science around VEO-IBD.

Providing Family Insights in VEO-IBD Management

At the core of our mission, the VEO-IBD Foundation seeks to provide the medical and research community with the family perspective of raising a child with VEO-IBD.

Click Here to access our article in the Journal of Pediatric Research entitled Family Reflections – Research Gives Back Childhood: A Family’s Experience with Very Early Onset Inflammatory Bowel Disease.

Pediatric Research; https://doi.org/10.1038/s41390-024-03506-8

Meet our team

Our leadership takes decades of business and nonprofit experience to improve the lives of families dealing with VEO-IBD.

Josh Carter

Founder & CEO

Sarah Carter

Founder & COO